Diagnosis Diabetes: After a Year

025It’s actually been a year and almost three months since the 12 year old was diagnosed with Type 1 Diabetes.  A year and three months of shots, insulin, blood testing and Those Infernal Glucose Test Strips scattered all over the floor.

He swears he puts them in the trash can.  But there they are, on the floor, stuck to the bottom of my shoe, under the couch.  I have even found them inside my book bags. And of course, as I mentioned in a previous post, once in my salad.

Our floor has also been carpeted this year with the paper seals from insulin pen needle cases, and the little green caps from pen needles (which, just for the record, hurt JUST as bad as a LEGO if you step on them barefoot), and occasionally the needles themselves (I think we have already established that those hurt worse than LEGOS).

We had some real fun back in August, when the 12 year old left his insulin pen in its case on a bench at an outdoor mall, and five minutes later, when he ran back to get it, found the case, but no pen.

At least it didn’t have a needle attached to it, so whoever took it couldn’t have given him or herself a shot, because that could have been really, really bad, if not fatal.  But seriously, what kind of person takes an insulin pen that they find on a bench?

A month ago, the 12 year old was finally put on an insulin pump.

<pause for heavenly music and rainbows>

No more pen needles!  Only one needle every three days instead of 5-6 shots a day!

The blood testing remains a constant, however, 5-6 times a day.  So the Infernal Test Strips are still the bane of my existence.

The pump gives him a steady supply of insulin throughout the day, as well as delivering extra when he reports that he is about the eat carbs, so overall his blood sugars have been much more manageable.

Everything is wonderful.

027Well, EXCEPT FOR the times when the pump doesn’t work.  It can be bubbles in the tube, or the catheter (infusion set) not being set correctly, but when the pump fails to deliver insulin, it gets very bad, very quickly.

A week after he got the pump, there were bubbles in the delivery tube, which meant he wasn’t actually receiving any insulin. His glucose number was so high then the meter couldn’t read it. That means it was over 600.  Normal is 80-150.  Very bad, very quickly.

Although we gave him an injection of insulin and brought it down right away, he ended up with such bad stomach cramps at 6 a.m. the next day that I called 911 for the first time ever.  By the time the ambulance and paramedics arrived, the stomach cramps had lessened enough that they let us drive him to the ER instead of giving him a $1000 ambulance ride (phew).  And by the time we got to the ER the cramps were pretty much gone, so after some tests, they sent us home.

But still, the neighborhood appreciated the excitement early in the morning.  I know this because the 8 year old from across the street called me, much to her mother’s chagrin, in the middle of the excitement (no fewer than 9 people in my tiny living room) to ask me why the ambulance was outside our house.

And then there was the other day, when he rolled over in bed at 6 a.m. and knocked the infusion set out of his side, and then shoved it back in (all the nurses reading this scream “Noooo” in unison) and taped it in place with medical tape. He got up at 8:30 a.m. and told me “Oh, Mom, by the way, I don’t have any infusion sets left,” so I called the pharmacy, only to be told us we couldn’t get any more that day because the insurance company wouldn’t pay for more until the following Monday, six days away.  Just then he came out of his room and said, “I guess the infusion set isn’t working right after all, so I’m not actually getting any insulin, because I just tested my blood sugar and found it was over 500.” Well, that’s just an example of spectacularly bad, very quickly.

Diabetic supplies sharing the table with Halloween candy... the new normal.

Diabetic supplies sharing the table with Halloween candy… normal around here.

The day was saved by Shelley, our rep with Roche, the pump manufacturer, who drove over here that afternoon, in the RAIN (again, a big deal, here in So Cal this year), to drop off a couple of infusion sets to get us through the next few days.  Luckily the 14 year old had just baked some gluten-free cookies and we were able to share some with her.

All this to say, if you are diabetic and are considering a pump, we highly recommend the Accu-Chek Combo System.  Especially if you live in Southern California, because then you might get the World’s Best Rep, Shelley, who delivers miracles with or without cookies. 🙂

And that if you do get a pump, check for bubbles in the tube.  Often.

And also, that even with a diagnosis of Type 1 Diabetes, life goes on.  After a while it stops being the “new normal” and just becomes “normal.”

And that life with diabetes is nothing, if not interesting.

Categories: Diabetes, Family | Tags: , , , , , , | Leave a comment

No Filter December- Day 28: Flu With a Side Of Diabetes

So, the flu hit. I took the day off yesterday, and was planning to lay low today too, but then the 12 year old made himself breakfast.

Which would have been okay, but he has Type 1 Diabetes and gave himself enough insulin to cover for waffles and syrup.

Which also would have been okay, but the waffles turned out to be freezer burnt, so he couldn’t eat them, and once he has given himself insulin, he needs to eat within the next 30-45 minutes or his blood sugar could drop too low and he could pass out and the paramedics would then have to pay us a visit.

No problem, thought I from my cozy chair by the fire, he can just make himself some pancakes.  Except it’s 3 days after Christmas and I was sick yesterday so no one has been grocery shopping, so we were out of eggs, and all the other drivers in the house were either at church or sleeping off a late-night band practice.

There was no way around it. I had to run to the store to get eggs.

The 12 year old apologized profusely and promised me that he would run in and buy the eggs while I sat in the car, but once we got there, I felt okay so I said I would go in with him.

And then this happened and I realized I really should just have stayed put.014

Categories: Around Town, Christmas, Diabetes, Family | Tags: , , , | 4 Comments

Diagnosis: Diabetes. No Filter Friday

Since it’s No Filter Friday, I will not attempt to write all these thoughts into a “piece,” but will instead simply categorize the list as

Everything I Said On Facebook About Living With Diabetes That Didn’t Get Made Into A Separate Blog Entry.

October 11, 2013
Ryan is doing really well.. probably will go home from the hospital late tomorrow. In the meantime, Alan and I have received so much training about levels and dosages that our late night texts to each other consist of equations. #NerdsRule

080October 14, 2013
Determined to give himself the next shot, Ryan carefully prepared the syringe and then dropped it. It impaled itself in the hardwood floor and there it stayed, quivering. Well, if you’re going to drop your medicine, it might as well be cool.

October 15, 2013
Apparently the new diabetes regime is not enough for my brain to keep track of, because it has started inventing new, vital tasks that must be done daily and showing them to me in my dreams. Which is why I woke up at 7 a.m, clutching my phone, saying, “We have to do something at 7 every day. What is it, Alan? What is the 7 o’clock thing?”

October 16, 2013
So I now know two things: 1) It’s not a good idea to try to dispose of lancet needles in the dark at 2 a.m. and 2) Lancet needles are sharp. At least I got a good draw off it. Too bad I didn’t need to test my blood.

November 1, 2013
For dinner I picked tomatoes out back to put in a salad, and as I put a serving of salad on my plate I could have sworn I saw a pincher bug run across the plate.  I quickly lifted the salad up and found a blackened, wilted piece of lettuce, but no pincher bug, no matter how hard I looked.  So I convinced myself I had just seen the dark piece of lettuce falling onto the plate, not a bug or anything, and made myself eat it, tomatoes and all, because I just went out and picked them so I was darned well going to eat them.  And then, when I was close to being done, I looked down on my plate and found one of the test strips from Ryan’s glucose meter in my food.  A USED STRIP.   AAAAUGH.   Needless to say, I stopped eating.

January 21, 2014
Everyone is always going on and on about how painful it is to step on a Lego. I used to agree. Until I stepped on an insulin pen needle. #IWin

Categories: Diabetes, Family | Tags: , , , | 1 Comment

Diagnosis: Diabetes – For those of you who are Visual Learners …

A good in-a-nutshell about Type 1 Diabetes.

Eden's Effort

I found this terrific Infographic the other day so thought I would share…

Not all of us find it easy to learn with a bunch of words on paper (or a computer screen).

Hopefully this might help a few of you out there – please SHARE to help EDUCATE…


View original post

Categories: Diabetes, Family | Tags: , | Leave a comment

Diagnosis: Diabetes. Winter Camp

Photo Credit: Karen Capps

Photo Credit: Karen Capps

It’s been three months since my son was handed a diagnosis of Type 1 Diabetes.  They told us in the hospital that things would soon become just part of the routine, and we have found this to be true.

But every once in a while you still kind of stop and go, “Oh.  Right. Diabetes.”

Like this weekend, for instance.  The boy has gone to Winter Camp with the church jr. high group.  Now, this is my fourth child, and I have never had a problem putting a child on a bus for camp. I’ve been to enough church camps myself to know the routine well enough that I know they will be fine.

But, of course, this time it was different.  This was the first time I had to deal with the worry that Something Might Go Wrong.  And see, I’m not a worrier, so I don’t really do it well.  I swing from “Oh no, oh no, what if….” to stiff-upper-lipping it, with such rapidity and regularity that I’m pretty sure I’m doing it wrong.  Which then brings about a whole other kind of guilt as I worry that I’m not a good worrier and maybe I should be feeling worse than this.

And so, for the weekend, I am sticking to the mantra, “No news is good news.”  And I do mean mantra.  There are times when I’m chanting it, in between forcing myself to breathe.

I know that he’s going to be fine.  He’s been giving himself shots for months, and we stopped helping him with figuring doses a few weeks ago.  We even banned him from using the nifty spreadsheet I set up that figures the doses automatically.  And he’s been handling everything pretty well.

But, you know, he’s 11.  Eleven year olds struggle with brushing their teeth and changing their underwear on a regular basis.  Not to mention that when he is hungry and frantic to start eating, his math skills go out the window.


“Okay, no, let’s try that again. ”

(eye roll) “Moooom. It’s fine.  Just give me 7 units of insulin so I can eat.”

“No dear.  Seven units of insulin will result in a blood sugar of about, oh, 23.  Let’s do the math again.”

So I did a little training session with the two youth pastors that were going to camp, just so they would know what he needed to do and to make sure that he didn’t cut any corners.  Because, you see, when my older son was 10, he went to camp for a week, and when he got back he told me he took a shower every single day. But when I was pulling dirty clothes out of his bag, I came across a bar of soap… still in the wrapper.  Turns out he did take a shower every day.  He just didn’t bother to use soap.

So I was pretty confident that there were going to be some attempts at corner-cutting going on this weekend, and I had some good ideas about the specific areas in which the corners would be cut, and I shared this information with the pastors.  Unfortunately, in order to put that information in context, I had to give an overview of everything Ryan had to do every time he ate.  And this occurred, mind you, an hour before the kids started arriving at the church to get on the bus.

I was already thinking these men were saints for taking the buck-stops-here responsibility of a bunch of jr. high kids at camp, even though they do have an awesome team of counselors going with them, not to mentioned a fully-trained nurse on staff at the camp itself.  But having to deal with a crash-course in the realities of Diabetes right before the bus left has now raised them in my estimation to angels.

In fact, now that I think about it, perhaps I should be worrying about them more than I’m worrying about Ryan.

No news is good news.  No news is good news….

Categories: Camping, Diabetes, Family | Tags: , , , , , | Leave a comment

Sprouts, Poptarts and Humble Pie

001It was Friday night. The hubby and I needed some alone time, so we went out.  To the grocery store.

This is how you can tell our age and domestic status.  Married, four kids, pushing 50… yup, date night means a trip to the grocery store.

And because we are this family, with our various auto-immune challenges, ranging from gluten, soy and casein sensitivity to Vitiligo to Type 1 Diabetes, with some lactose intolerance thrown in for good measure, we were having our “date night” at Sprouts, the Valhalla of special ingredients, stocking up on gluten-free pancake mix, dairy-free “yogurt” and the all important Bio-K to balance out our digestive tracts.

Don’t worry, that’s as TMI as I will get about digestive tracts.

I always look forward to a visit to Sprouts, because with all the dairy-free, soy-free, gluten-free, MSG-free, hydrogenated-oil-free foods they offer, it feels like they speak my language. And a couple of times a year, they speak my language for half-price for a full 8 days, so that really makes it fun to shop there.

Except we missed the memo that this Friday night was “take your overwrought and fussy children shopping” night.

I heard him before I saw him.  I heard him running from one end of the store to the other.  From my position in the juice aisle I paused and looked toward the center aisle of the store.  Sure enough, I caught a glimpse of him.  A small, black-haired boy, running, just as his footsteps had suggested, full-tilt, waving both arms above his head yelling, “Mommy!  Mommy!  MOOOOOOMMMMMMY!”

Artwork by Erin

Artwork by Erin

He was not lost.  He was not distraught.  He was obviously having the time of his life.  I stood there with a bottle of organic lemonade in my hand and tried to project authoritative displeasure in his direction the next time he sped by the end of my aisle, but he went by so fast I barely saw him, so the “Thou Must Stop With Thine Misbehavior” vibes apparently bounced right off him.

I contented myself with packing things into my cart while vehemently thinking the things I would like to say to his mother about the importance of Keeping One’s Children In Check In Public Places.

Now, you would think, with four of my own, and with a small nephew who almost exactly fits the description of this little boy, apart from hair color, that I would have a modicum of sympathy.  Or at least understanding.  And see, NOW, from the comfort of my home, after the fact, I do.  I totally get it.  But I’m getting ahead of my story here.

Because at the time, I was supposed to be having ALONE TIME with the hubby.  And this whirlwind of a child was distracting me from my date.

In 20-20 hindsight, it does not escape me that while half the problem here might have been this boy’s mistaken assumption that the grocery store was a playground, the other half might very well have been my mistaken assumption that the grocery store was a venue for Quality Time With One’s Spouse.

However, at the time, it was all about how little his mother was doing to curb misplaced exuberance.

It didn’t help that there was another lady there at the same time with no fewer than six 5 to 8 year olds in tow.  I must admit that she was doing a spectacular job at keeping them polite and orderly, despite the fact that Whirlwind Boy was flying by with distressing regularity and tempting her youngest beyond the poor child’s ability to resist.  A quick, “Hold my hand NOW!” from Mother was necessary to prevent the hand-waving cavorting from becoming epidemic.

Which, by comparison, made Whirlwind Boy’s mother look even more lax in her duties and added fuel to my vehement mental fire.

I finally took refuge behind a display of Christmas treats, actually feeling thankful that they were on display two months early, since they made such an admirable shield from possible collisions with flailing five-year-old arms and legs.  There I waited for the ruckus to subside, and eventually it did.

My date, on the other hand, was bravely shopping for cheese as if nothing was amiss.  He’s bigger than me.

Once the store was quiet again, I assumed the Whirlwind Family had left the shore, heaved a sigh of relief and ventured out from my hiding place, rejoicing that while I was there, I had discovered gluten-free Toaster Pastries in two flavors.

I met back up with the hubby and we had a conference that went something like this:

ME: Is that it?

ALAN: Ummmm… I don’t know, can you think of anything?

ME: I don’t know. Did you get cheese?

ALAN: Yep, I got cheese.  So… what else?

ME: Ummm….. I don’t know.

ALAN: We should go home.  We sound pitiful.

ME: Yeah, we should go home. We can always come back later. After we have slept.

Let’s just say it had been a long week.

We made our way to the checkout, and as soon as we got in line, who should pull her cart up behind us but… yep, you guessed it.  Whirlwind Boy’s Mom.  With son.  And daughter, who was a slightly toned down version of her brother.

Our stuff was already on the conveyer belt, so we were stuck.  Whirlwind Boy ran around us and stood where we needed to stand to pay and struck up a conversation with the checker.


The checker took it all in stride and chatted with him, while I, feeling slightly huffy, had to maneuver my cart around the boy to get it to the end of the checkstand.

“My name is Cory.  What’s yours?” bantered the checker.

“MY NAME IS COLIN!” he announced to everyone in the store except for those at the far end in the dairy section, who were probably out of earshot, what with the humming of the refrigerators.

He finally threaded his way between Alan and I to stand by his mother, who had been quietly but firmly trying to get him to return to her this whole time.  As he walked past Alan, Alan said, ‘Hi, Colin!”

The boy whirled around, mouth agape, and said, “How did you know my name?”

At this point, just like the Grinch when he hears the Whos singing in Whoville despite his attempts to steal Christmas from them, I began to feel the ice around my heart begin to crack.  Because this kid was undeniably cute.

I was still judging, of course, because when we are tired and not reining ourselves in and fall back on our natural inclinations, judging comes so much easier than, oh, reasoning, or empathy, or connecting with our fellow human beings.

“He has probably had too much sugar,” I mused, feeling superior because I never took MY children shopping when they were all sugared up.  (In order to think this way, you understand, I had to conveniently forget the Sideways Tipping of a Full Basket of Groceries Incident, as well as the one that involved a two year old colliding with a sweet lady’s cart of vegetables. And we won’t even talk about how an entire department store was locked down when another two year old of mine hid under a rack of girl’s clothing.)

Selective memory is so comforting, but it always comes with a price… that inevitable fall before which pride goeth.

Almost as soon as that judgmental thought had crossed my mind, the friendly checker grabbed a container of Organic Lollipops and offered them to Whirlwind Boy and his sister.

The sheer panic in their mother’s voice stopped my self-righteous self in its tracks.

“NO! No, please, don’t give them sugar!”

So.  Apparently this child’s behavior had nothing to do with the mother’s inattention to healthy diet.  The fact that she was shopping at a store that carries healthier food than most should have clued me in.  Apparently this mother knew all about the evils of sugar and red food dye and nitrates and all the other crazy-making ingredients being sold by Evil Big Business Food Companies.

Which left only one conclusion: this child was just like this.  All. The. Time.

Within a split second, I went from judging the mother to my heart going out to her.

This child was not a monster.  This child was a delightful, outgoing and very intelligent young man.  He was the type of piano student I love to teach, even though he would most likely fall sideways off the piano bench or get his fingers stuck in the lid while sitting on it.  The type of teen I love to have in my English classes, even though he would most likely stir up enough of a ruckus that building maintenance personnel would feel the need to remind me on a regular basis that There Is A Class Below Yours And You Are Shaking The Building.

ESTELA, Tratamiento Facial (2)

ESTELA, Tratamiento Facial (2)
(Photo credit: estelabelleza)

The type that is often misunderstood by the system and those who cling to the status quo, who gets shackled with labels and drugged into submission but ends up growing into the kind of adult who can change the world for the better. The type whose mother should be awarded instant Saint status when the child comes of age, along with a life-time membership at a spa and a free yearly vacation in Hawaii.

This is what Ty Pennington looked like as a child.

And apparently, it was very, VERY bad to give this child sugar and his mother knew ALL about that.

Without hesitation the checker whisked the lollipops out of sight with one hand and offered a box of stickers with the others.  Whirlwind Boy declined politely and commenced trying to hang upside down off the neighboring checkstand. Alan and I picked up our groceries and left the store, but not before I caught the mother’s eye and smiled at her.  A little nod of solidarity.  A little glance of, “Don’t worry, he’s awesome.”

And although she probably didn’t know it, a little moment of, “I am so sorry for judging you and I vow I will never, ever, ever do it again.”

Categories: Around Town, Diabetes, Family, Food | Tags: , , , , , , , , , | 2 Comments

Diagnosis: Diabetes. The Day of The Unraveling Of Mom.

stress strain redo

Stress Strain Chart: Wikipedia
Additional artwork mine. (I know, I know, it’s a gift)

Diary Entry from one week after Ryan came home from the hospital:

The crisis has passed, and we are now settling into our New Normal of Diabetes Regimen.  Ryan is handling everything very well, Alan is back at work, and we have recommenced school.  Everything is great.  I have nothing to complain about.

I am noticing, however, how very irritating people can be.  I can’t really explain this, but in the past few days, people have been so difficult to deal with.

Other people, you understand, not me.

It occurs to me that perhaps what is happening is that a combination of stress, sleep-deprivation and delayed-onset-motherly-freaking-out has begun to bring out in me my Inner Cranky Person.  I usually keep her well at bay (unless I lose something, but that only happens once in a while, and is TOTALLY UNDERSTANDABLE).

<Glares left and right just in a case a family member appears to say otherwise>

This week, however, my ICP seems to be making her voice known.  I worried about that for a few seconds, until I realized that I was too stressed, sleep-deprived and freaking out to really care, and reasoned that since I know many cranky people who live their daily lives requiring the world to walk on eggshells around them, it is actually possible to be cranky and not have the Entire World Blow Up.  Which is what I think, in the back of my mind, I believed would happen if I were to ever be impolite. So apparently, and I don’t remember actually doing this, but the signs are there that I have, apparently I decided at some point that it’s my turn to be cranky.

So here’s how today went:

<Fill this part of the post with errands all over town compounded by drivers being affected by the full moon and the fact that I was running these errands for a family member who was getting ready for a long-awaited trip, on which I was now not able to accompany her, given our current status of Newbie Diabetes Family, but I’m Mom, so I couldn’t act jealous.>

Extrapolate mood after that, factoring in a math lesson, once I got home, that was pretty much like this video:

Kid Snippets: “Math Class” (Imagined by Kids)

Also factor in the subsequent realization after this Math Lesson from Hades that I am going to have to enforce a gluten free diet with the child who struggled so much in the math lesson.  She had been on one in the past, but we eased her off it.  Let’s just say the symptoms have returned.  Lack of focus is one of them.

Giving shots is easy compared to policing gluten-freedom.  But I so NEED to have something else to do, so why not?

I finally tried to cook dinner, since my last two piano students mercifully stayed away for unknown reasons, (perhaps their guardian angels whispered warnings in their ears?) but we were out of hamburger buns, so I tried to call Alan to ask him to pick some up, but the son-of-a-goat-herder-phone-cord, which is long so that it can reach all over the kitchen, has reached that inextricably tangled state, and rather than calmly working on it while I talked to him, I just pulled as hard as I could on the ends in opposite directions and walked into the kitchen without really even looking to see if that worked, even though I knew darn well that brute force never works with the stupid cord when it is tangled.

And it hadn’t. So I knocked the whole phone on the floor, along with the stuff on the counter, which included my cell phone, which popped open, flinging its battery and cover all over the kitchen floor. Not to mention that the dang phone hung up at some point in all this violence, so I had to call Alan again, so at that point, the conversation went something like this:

Alan:  Hello! How are you doing?

Me:  Well the phone cord is tangled (still struggling with it) and it just won’t untangle (grunt) no matter what I do (grunt).

Inner Monologue:  This stupid cord! Why won’t it untangle? I’ll just pull harder! That’ll show it!

Alan:  Oh. (silence while he tries to figure out why I called him to tell him that)

Me:  Anyway, what time are you (grunt) coming home?

Inner Monologue:  It’s all Alan’s fault. It’s all his fault this thing is tangled like this.

Alan:  Um…  (silence while he tries to figure out why I am asking him this, since it’s the same every day)…  I should be there by 5:30.

Me : (Looking at clock for first time) Oh. It’s only 4:30. (grunt) Oh, I didn’t know it was 4:30. Never mind. I can get the buns myself.

desert & wine!

desert & wine! (Photo credit: ookalieoo)

Inner Monologue: I’ll go to Target. Then I can buy buns AND a cordless phone.  I’m going to buy some chocolate and junk food too and eat all of it with a glass of wine.

Alan:  Okay. Um. What buns?

Me:  (realizing I’m beginning to sound crazy) For dinner. Never mind. I can get them myself. I just didn’t know it was 4:30.

Alan:  Okay.

Me: My students canceled so…. anyway, I didn’t know it was 4:30.  Um…I have to go, bye. (hangs up before she does any further damage)

So I went and bought the ding-dang buns. No junk food, though, because when I got to the store, it inexplicably turned out to be the grocery store instead of Target.  And since I had foiled myself on my phone-replacement plan, I became sanctimonious and healthy and rejected all the rest of the promises I made myself over the cheese-whiffing phone cord and bought some nice vegetables instead of the junk food.

After dinner I could have kicked myself for not at least buying chocolate, however, and ate six somewhat stale cookies to make up for it.

And about halfway through the cookies I noticed that everyone had gone to the other end of the house, leaving me by myself, bringing me to the conclusion that embracing my Inner Cranky Person is all well and good, but there is actually a REASON that politeness is a better policy.

It has to do with not eating alone.

Categories: Diabetes, Family, Food, Homeschooling, Relationships | Tags: , , , , , , , , , | 2 Comments

Diagnosis: Diabetes. The First Night Home

Welcome Home

Welcome Home (Photo credit: Matthew McVickar)

Arriving home from the hospital was everything it should have been.  The dogs went wild.  The house had been cleaned by a parade of friends and relatives.  Dinner was delivered, piping hot, at dinner time by another friend, along with Welcome Home balloons for Ryan.  I was feeling pretty optimistic about things.

And THEN I decided to treat Ryan to some ice cream.  You see, I noticed that he was starting to feel deprived with all the carb counting.  Reality set in that afternoon when he wanted a snack, which has to be under 10g of carbs, and the first thing he chose was a cookie… too high a carb count for even one cookie, and the second thing was a bowl of cereal, until I pointed out that in order to stay under 10g he would have to have just 1/4 cup of cereal.  So I offered him carrot sticks, peanut butter and a slice of turkey, but that is NOT a typical happy 11 year old boy snack. At least, not this 11 year old, not yet. He ate it because he was hungry but then he was quite sad.

So I went to the store and bought some ice cream.  14g for 1/2 a cup (incidentally, the “low carb” ice-cream had exactly the same carb measurement as the regular vanilla.  Whatever.).  Then, when I gave him his bedtime dose, I added enough insulin to cover those 14g of ice cream and let him have a bowl.  He was very happy and felt very normal.  I was the hero.

White Board | 219/365

What the dosage equation looked like to me at the time.
White Board | 219/365 (Photo credit: mfhiatt)

Until Alan decided to review the numbers we are supposed to use in figuring the dosage, which change for the nighttime dose.  He found a note on the page that said you are supposed to cut the dose in half if it’s bedtime and you are adding insulin to cover a snack.  There are a lot of complicated math-type and detail-type reasons why this is totally not my fault, including the fact that although my oldest son claims he heard the trainer mention this particular detail a number of times, I never did.   I heard related details, just not this particular one.  That’s my story and I’m sticking to it.  At any rate, my bedtime dose was one unit high.  My hero status began to teeter.

Well, okay, then, so just ONE unit, that shouldn’t be a problem, I thought.  But we tested him again just in case (which means another poke in the finger).  It was lower than usual, but still very normal.  Actually, it would have been a good number except that I’d never seen it that low before.   But still well within normal, so I sent him to bed and figured it was fine.

Then came the 2 am check.

We didn’t actually HAVE to do it, but the nurse had suggested we do it for at least a few days until we get good at this.  So I volunteered to do it, because Alan hadn’t slept well ever since this all started, while I had been sleeping a good 8 hours every night, even at the hospital.  (I chalk that up to my training in Youth With A Mission, where we often slept on a school bus driving through the night, two to a bench seat).

The short version of the story is that things didn’t go perfectly.  To really communicate the angst of how badly it went, I think it best to share an excerpt from an email I sent around 3 a.m. to my friend Di in Washington, who works night shift. And let me just give this disclaimer: Yes, good Christian girls do swear sometimes.

…So I get up at 2 am.  I almost go back to bed, because, you know, I checked his blood sugar at 11 and it was okay, but they said 2 a.m., so I make myself get up and go check it.

Now, this means I have to get out the meter, and a test strip, and the pokey thingy, all by the light of my cell phone because the flashlight was in Ryan’s room instead of where I would need it BEFORE I went in.  So now I’m irritated.  So I go in there, trying not to wake up Ian, grab the flashlight, sit down on the edge of the bed and try to simultaneously hold the flashlight while inserting a tiny little strip of plastic into a tiny flat little hole, all the while peering through two pairs of glasses because I don’t have my contacts in and need my reading glasses to read the meter, and my hair of course keeps falling across my eyes, obscuring my view.  I get the damn strip in the damn machine, shove my bangs under the ear pieces of one of my pairs of glasses and grab Ryan’s hand to poke him.  Can’t see well enough to figure out where to poke the damn pokey thingy, and end up picking a spot nigh unto impossible to get blood out of.  Not to mention that after I’ve squeezed it a bunch of times I discover that was the same finger we poked at 11.  Ryan’s too sleepy to be any help. So I get some blood on the strip, but it’s not enough so the machine reads “Error, use a new strip.”

Blood glucose meter and testing strips

Blood glucose meter and testing strips. Yep, I used about that many. (Photo credit: DeathByBokeh)

The bottle of strips, of course, is out in the living room because I, in my infinite wisdom, only brought one into the room.  So I get up, knock a couple of things over and careen out to the living room, grab another damn strip and put it in the damn machine.  Then I squeeze the damn finger again and test it. It’s still not enough blood and I get the same error. 

I still haven’t brought the damn strips into the damn room, so I go back out to the living room, grab another damn strip (still only one because at this point there’s no way I’m admitting this is not a good method) and shove it in the damn machine.  Squeeze the finger again, still not enough blood but this time I get smart and don’t use it on the strip.  Poke another finger and get blood everywhere, at which point I realize I forgot to bring a dainty little cotton ball to mop up with.  Whatever, I just let him bleed and get the damn blood on the damn strip and the damn machine says his blood sugar is 68.  Damn it, that’s too low.  So that extra unit of insulin we gave him DID make a difference. 

So I run out to the kitchen to get exactly 4 oz. of apple juice, because that’s what the book says to do and I was tested on that in the hospital so I know THAT number, anyway. I search for the tiny little juice glasses, because that’s what I always pictured using when we talked about this in training, but I can’t find any of them, and then it finally dawns on my befuddled brain that a coffee cup will do just fine if I measure the juice with a measuring cup first.  I run back into the bedroom with the juice and command the boy to drink it all.  This is more sugar at one go than he has had for days, and it’s his favorite apple juice, so he’s happy, but he actually starts to fall asleep before he has drunk it all. The nerve.  I make him finish it, belatedly hand him some toilet paper for his bloody fingers, and tell him I’ll be back in 15 minutes to retest him.

Then, I have to amuse myself for 15 minutes at 2:15 a.m.  I have finally found a valid use for the Words of Wonder game on Facebook.

Three games later, I go test him again.  Which means poking him AGAIN.  I pretty much hate myself at this point for inflicting so much pain on my child and hasn’t he gone through enough and why did I volunteer for the 2 am shift because I’m all alone here trying to juggle the flashlight and the meter and the damn strip and the pokey thingy and doing everything wrong.  At least I got a good drop of blood on the first poke this time, measured it on the first strip just fine, and the reading was 115, which is normal.   He rolled over and went back to sleep and I went out to the computer and played another game of Words of Wonder because so there I’m an adult and I can play it if I want to.  And then I realized my adrenaline was crashing and I was shaky, so I poured myself a teacup full of apple juice and drank it. If there had been a bottle of wine open I would have had that, but there was no way I was messing with a corkscrew given my recent ineptitude with the pokey thingy.

And tomorrow I have to tell Alan all this.  Except it will be, “Yeah, it was a little low so I gave him some juice and it came right up.  No big deal.”  I will have Ryan wash that hand before Alan sees it and all those nasty pokes will be our little secret.

At the time it was happening, I thought to myself, “I’m pretty sure I’m going to break down sobbing when this is over,” but I didn’t.  I played Words of Wonder and wrote an email.  Apparently this is how I deal.  I’m wondering if the breaking down sobbing that everyone seems to expect from me over this entire situation is never going to come, because I’m just not.  I’m just dealing. Things need to be done, and I am doing all the things.  

And I am playing unnecessary games of Words of Wonder at 3 a.m.


Categories: Diabetes, Family | Tags: , , , , , , , , , | 4 Comments

Diagnosis: Diabetes. The Home Team

Home Delivery

Home Delivery (Photo credit: Mr. Ducke)

On my way out the door to the Urgent Care that fateful Tuesday when Ryan was diagnosed, I posted a quick status on Facebook: “Taking the 11 year old to Urgent Care with chest pains. Probably dehydration – poor thing can’t keep anything down. Please pray.”  At the ER I updated with another status, and kept posting as things developed.

And this is when I found out just how awesome my friends are.  I knew I had awesome friends.  I did.  But I just didn’t realize HOW awesome they were until this crisis blind-sided us.  My phone was buzzing with texts as word got around. Daughter Emily notified certain key people and it went from there.  A prayer request went out on the church email loop.  People started offering help on Facebook and via text and email.

We have been in crisis before, with my own mystery illness a couple of years ago, and the four times I was in the hospital for childbirth, and when my father passed away in 1998.  So we had been on the receiving end of the dinner-deliveries that someone at church or our homeschooling academy would set up for us.  But each time in the past, when people would say, “If there’s anything I can do, let me know,” I would intend to answer them but then just never figured out what the perfect job would be for them to fulfill, and then the crisis would pass, and then I would look back and go, “Huh.  A lot of people offered a lot of help that I didn’t accept, which made that whole thing a heck of a lot harder than it needed to be.”  So this time, I found myself accepting on the spot.  I didn’t get back to them later.  I simply said the first thing that popped into my head when they offered and didn’t allow myself to over-analyze.

“Can I make you dinner?” … “Yes, please.  Someone has tonight covered.  Can you do tomorrow?”


Laundry (Photo credit: KellyK)

“I’ll come over and do laundry, dishes, whatever you need.”… “Okay, I’ll get Alan to hide a key somewhere for you.  Friday okay?  The hamper at the foot of my bed needs washing.”

This took some sucking up of pride.  Especially knowing that a friend was going to be washing and folding my underwear and seeing what a disaster the house was. Considering that I left for the hospital at the end of a long day of sick-boy-in-the-house, I didn’t get much cleaning done that day.  And accepting all the food… well, that was easier, but it still took an admittance that I really couldn’t do it all myself.

I think I learned my lesson the last time I needed help.  I was sick for so long, I had to receive help.  I couldn’t function without it.  And I learned then what I discovered anew now… the sting of swallowing pride is nothing compared to the joy of letting people help you.  By the time we got home from the hospital, I felt completely loved and supported by those around me.  So maybe I couldn’t bring the awesome nurses home with me.  But I had some awesome friends and family, who I could count on to pray, to cook, to clean, to help my other kids, and to just call or send me a line saying, “I’m thinking about you.  You’re going to be okay.”

The thing is, I would have done any of those things for any one of my friends.  No problem.  Pick your kid up and take them to the park? Sure, I’ll do it.  Come over and do your dishes? Where’s the key?  Cook you dinner?  I’m on it.

Show up at the hospital with things like Starbucks and interesting sick-bed-appropriate games and Lego kits, and spend an hour walking the hospital ground with you, telling you it’s okay that you are unraveling and snapping at your family members over silly things?  Well, maybe I couldn’t do that before, but I can now.  But more importantly, I know to do it because no fewer than five different friends, who have each walked down similar roads themselves, did that for me.   It’s the camaraderie of those who have slept in those hospital-chair-bed-torture-device-things.

So why do I tell you this?  To brag on my friends?  Well, they are pretty awesome, I admit.  I can’t take credit for that.  But no, it’s not just to brag.  It’s to point out two things that I learned through being on the receiving end of help.

1) When someone you know is in crisis, don’t be afraid to come forward and offer to help.

  • Be a little pushy, even, so that they understand that you are not just saying platitudes, but that you really mean this.  (Now please understand that when I say to be a little pushy, I mean a LITTLE pushy.  It didn’t happen this time, but in the distant past, I can remember coming up against people who wanted to come in and take over our lives on their schedule.  So be sensitive and save the Savior complex for another time.)
  • Give specifics. “I can give your kids rides to classes and meetings – what’s your schedule?”; “I have 3 hours on Thursday – I’ll come clean your bathrooms.”
  • And then (and this is really, really important), SHOW UP and do the thing you said you would do.  Again, no one let us down this time, but I have seen it happen, and it makes it harder for the person in crisis to accept help when they are afraid it won’t come through.

2) If you are on the receiving end, for goodness sake, accept the help you are being offered.

  • Don’t worry about the details.  Just say “Yes thank you” and let your awesome friends figure out the details.
  • Be honest about your needs. “No, I don’t need dinner, but can you do some grocery shopping?” Don’t be afraid to ask.  They want to help – they just offered it.
  • Remember that people might not deliver their help perfectly.  We are still finding dishes and laundry “put away” in strange places.  It’s actually kind of fun.  Relax your personal rules a little and choose to be blessed instead of upset.
  • Keep them updated – Facebook and Twitter and email are perfect for quick but easy updates.  You don’t have to share everything, but let them know their prayers are working. No, really, you really do NOT have to share everything.  Details about medications and bowel movements are not necessary.  But an update once or twice a day is nice.

They say it is better to give than to receive, and sure, that’s true and all.  But when you open up your life and let people in, your heart begins to grow.

So let people in.  Let people know you are struggling.  Let people pray for you and send good thoughts your way and light candles and whatever else they offer, however they want to express their solidarity, whether or not it lines up with your particular theology.

Receiving help has changed me.  I received so much more than the help, which would have been enough in and of itself.  I received love, which has swelled up in my heart to overflowing, and is causing me to look for ways I can pass it along.  It’s more than a “pay it forward” kind of a thing — it’s a living, breathing, organic thing that thrives on connectedness, gratitude and self-sacrifice.  It is, I believe, what God intended when He made us – pure love, expressed in a thousand little details, each one reflecting His image. He created us for relationship; when we erect walls to protect hearts that have been wounded in the past, we shut out the healing He means to bring through others.

Because while people can be pretty awful, and it is wise to remove one’s self from toxic situations, people can also be pretty awesome, if you let them.

Categories: Diabetes, Faith, Family, Homeschooling, Relationships | Tags: , , , , | Leave a comment

Diagnosis: Diabetes. Nurses – My New Favorite People.

Don’t get me wrong.  Doctors can be pretty awesome too. But the nurses we encountered at Miller Children’s Hospital were amazing.

I know, I know, I sound like a PR campaign, but if anyone made the transition easier for us into this new lifestyle of Type 1 Diabetes, it was the nurses.

Up in the PICU, they kept telling us about the “awesome nurses down on the second floor,” who would be training us about diabetes.  But the thing is, these PICU nurses loved their jobs so much, they just couldn’t help themselves. They went ahead and showed us the ropes.  One nurse brought in a bunch of different syringes and, apologizing that it wasn’t really her job to do this, proceeded to explain how they all worked and what the measurements were and how to remove bubbles from them and how to dispose of them, just because she “loved this stuff.”  It was her job, and she had a chance to talk shop with some willing listeners.

Nurse BrianShe went off duty and Nurse Brian came on.  I remember his name because he was the nurse for the two boys in the room, both of whom were named Ryan.  We had fun with that. And he not only showed Ryan how to lance his finger to get a drop of blood to test, but made him do the math to figure out what the dosage should be.  And then, when Ryan got that math right, he gave him a hypothetical number and asked him to figure out the dosage if that were the blood sugar.  Word problems from a nurse in the PICU. The homeschooler in me cheered.  He even told him to show his work (while Mom did a fist pump behind Ryan’s back).

And then he handed me the needle and said, “Okay Mom, you do the shot.”

I have never shot anything before.  Other than with a camera, I mean.  But sticking a needle into someone’s skin, on purpose? Especially on my sick baby?  My sick 11 year old “baby,” who is taller than me, granted, but still.  I had no idea how to do it but there sat Nurse Brian and Ryan, looking at me expectantly, and I realized I had a choice.  I could freak out, which would communicate to Ryan that this was scary and awful and wrong, or I could just suck it up and stick the needle into his arm and get on with it.  Because this was not going to be the last shot I gave.  So I did.  Grabbed it like a dart and jammed it into his arm.

Diggin' Myself a Hole

The Fence Post Hole Digger

Well.  Apparently I have watched too many episodes of Gray’s Anatomy.  Nurse Brian winced and said, “Oh, um, you don’t need to drive it in.  You just stick it in.”  Ryan did a little more than wince.  The shot I gave was a good intramuscular shot.  We were aiming for subcutaneous.


The Croquet Hoop

Think fence-post-hole digger as opposed to a crouquet hoop.

Still, at least it could only get better after that first one.  Although Ryan did wrap his arms around himself and declare, “You are never allowed to touch me anywhere ever again.” But I’m sure that was the blood sugar talking.

The next day, Ryan was moved into the care of the “awesome nurses on the 2nd floor.”  And they lived up to their name, but they were quite surprised with how quickly we caught on to the diabetes stuff.  I don’t remember if we let them in on the fact that the PICU nurses had already been over it with us.  So they probably think we’re all just geniuses, and that’s okay with me.

The day after that, we had three nurses.  Two were student nurses from California State University at Long Beach.  It made me want to go back to school, just seeing how eager they were to help, to learn, to become medical professionals.  By the day after that, Ryan was in such good shape, he was asked by another student nurse if he would be a test subject for a demonstration.  The student needed to pass a hands-on exam to show that he knew the correct procedure for a head-to-toe physical assessment.  Ryan agreed, and the student nurse came back a few minutes later with his instructor to do the test.  However, he had been banking on just Ryan and Dad being there, not being privy to the fact that two sisters and a mother were on their way back from the cafeteria.  So when he walked in the room he blanched visibly and said, “Oh, I didn’t know I would have an audience.”  Poor guy was nervous enough, but we made it twice as hard.

He did well, despite the fact that he stumbled a little when rattling off the lymph nodes.  I had no idea the human body had that many different lymphatic glands.   Well, maybe it doesn’t; he was stuttering a little.  At any rate, when it was over, the family gave him a round of applause and voted to pass him with flying colors.  I don’t know if the instructor took that into consideration, but he came back later, beaming from ear to ear, to announce that he had passed and to thank us for allowing Ryan to be his victim… er… subject.  He was a bright young man, and very personable.  I’m sure he will go far.  And the fact that he was able to display such grace under pressure as to pass that test under the watchful eye of no fewer than four family members may indicate that he has a promising future in ER nursing.

By the time we were sent home, I was genuinely sorry to say good-bye to the staff.  They had been our guides on our first shaky steps down this journey, our support, our safety net, our teachers and our cheerleaders.  And it hit me hard, as we left the hospital, just as it had 19 years before when we left the hospital with our first newborn child, that they weren’t coming with us. I had become quite adept at giving shots by then, and Alan had started out being adept, what with his classical guitar-playing, artist background, which had apparently developed far greater fine motor skills for him than my Keith-Greenesque piano-banging did for me.  Even big sister Emily had given a few shots.  And all that complicated dosage math?  I could do it in my sleep.  This year, my homeschooling/tutoring duties require that I teach 6th, 8th and 10th grade math, so I was up to speed on all the subtracting, dividing and ratio skills I needed.  I worked long division faster than the nurses could input the numbers into their calculators.

But the question still loomed, What If Something Goes Wrong?  As we walked to the car, I mentally reviewed the training notebook I clutched in my hands.  We had numbers to call.  We had a sheet that told us symptoms to watch for. We had two different blood glucose monitors and a whole box of insulin, not to mention some 8mm syringes.  We even had a red case that carried an emergency super-glucose dose in case Ryan passed out from low blood sugar.

But most of all, we had the assurance of all the trainers and nurses that we really had learned what we needed to know, and that we would do fine.  So just as I did when I gave that first shot, I chose to suck it up and get on with it.

Only this time, I was determined not to dig any fence post holes. Metaphorically speaking.

Categories: Diabetes, Family, Homeschooling | Tags: , , , , | 2 Comments

Blog at WordPress.com.

%d bloggers like this: